The Rights and Educational Needs of Sick Children and Adolescents
A permanent reflection upon the needs and rights of sick children in hospital or at home.
Active • language ENG
Mrs. Addie Sierksma
Hospital Teacher “in the Region” – The Netherlands
Other members of this Workshop:
From Bulgaria: Theodora (Armenkova) – firstname.lastname@example.org
From Croatia: Ivanka (Gregurincic) – email@example.com
From Hungary: Monika (Almassy) – firstname.lastname@example.org
From Sweden: Gerd (Falk) – email@example.com
From The Netherlands: Jan (Haverkate) (as member of the Board) – firstname.lastname@example.org
• To reflect upon the needs and rights of sick children in hospital or at home.
• To elaborate a precise and detailed Standard for the Educational Care of Sick Children in Hospital or Home Tuition
History and Status
The workshop is currently working on a revision of the Charter and discussion on the best use of the Standard.
In the past, the workshop has completed several tasks:
Education of children and adolescents with medical needs in hospital or at home
A HOPE – Survey (2007 – 2008) – Summary, Identified Barriers, Examples of Good Practice
by Ms Gerd Falk-Schalk, HOPE President *Updated* on October 2009
HOPE has asked the European Parliaments to collaborate in working towards a common strategy to guarantee continuity in the education of children and adolescents with medical needs, whether in hospital, at home or in a rehabilitation centre.
It was our intention that these answers and our HOPE Charter may be a good start for a discussion aiming at finding a common strategy to safeguard continuity in education of pupils that are also patients.
In October 2007 HOPE sent a letter to the then listed addresses of all Ministries of education in the 47 member states of the CoE.
We received 33 replies to the four questions which you will find below together with a general summary of the answers for each question.
An European Standard on the Educational Care of Sick Children and Adolescents has been approved by the General Assembly of HOPE in London, November 2006.
Members of Atelier 15 met in Rome in October 2002 with European colleagues
to continue the work with the Standard on education of children in hospital. Hard work was done and good proposals came up. A draft 9 was finished to be presented to the Board of HOPE and possibly later for approval to the General Assembly in 2004.
Also the future of our atelier was discussed in Rome, and there was an agreement, that as we have been working with texts for the Charter and a Standard for so long, it was perhaps not such a good idea to continue with the elaboration of another standard for qualified teachers as it has been proposed. On the other hand it was agreed that cooperation with other ateliers was wanted – and we welcome a future cooperation with Atelier 14 on Teachers’ Qualifications. It was also agreed that we would try to intensify our cooperation with parents’ associations. New members joined the Atelier in Rome. Some members of the Atelier happened to meet in Belgrade in October 2003, where it was agreed that it was time to hand over our work with the Standard for the scrutinising of the Board of HOPE. This was done by November 18th 2003.
The work of Atelier 15 has been continued after Barcelona as decided by the General Assembly in elaborating a more detailed and precise text in the shape of a standard in observable terms on the basis of the charter. It was decided that the standard should have a similar structure as that of the charter and follow the ten points enlisted in it. The draft standard is therefore an enlarged text to explain, how we can imagine the principles of the charter fulfilled.
Congress in Barcelona May 2000
The Board of HOPE met by the end of April 2000 and discussed the charter. A short form text was elaborated in which the main ideas was maintained. The reason was the wish to separate the document in a charter stating basic principles, which were presented to the General Assembly in Barcelona May 2002 – and a more detailed and precise standard to be worked out at a later time. This third draft for a charter was adopted by the General Assembly after a long, difficult and complicated process.
A draft Charter
The joint result of our very successful seminar in Meissen was a first draft for a European Charter for the Educational Care of Sick Pupils in Hospital and Home Tuition, which was published for comments of members in Newsletter 4/99. Quite a number of proposals for change and improvement were received and a second draft was published in Newsletter 1/2000.
Seminar in Meissen October 1999
A seminar was conducted in Meissen for the HOPE Atelier 15 and Saxon colleagues with the objective of completing the work on a charter for children in hospital.
A report on this seminar has been published with the title The Rights and Educational Needs of Sick Children.
The HOPE Workshop 15 on Sick Children’s Rights had been formed the year before the Uppsala congress in May 1996, but had not started its work, although by the congress almost all needed documents had been collected. The idea now was to extract everything of relevance to hospital education from the texts and to sort out the essentials after their common content.
Congress in Uppsala May 1996
Already on the Congress in Uppsala May 1996 it was accepted, that HOPE would seek to develop a charter for the education of sick children. This happened as a result of a proposal presented to the Congress, which was adopted by the Board and the work referred to Atelier 15 on Children’s Patients’ Rights.
We have already completed:
*A seminar conducted in Meissen/Germany, October 21st-23rd 1999 on The Rights and Educational Nededs of Sick Children.
*The elaboration of A European Charta on the Educational Care of Sick Children in Hospital and Home Tuition, April 2000.
*An European Survey on the education of children with medical conditions 2007-2008
Agenda and Minutes of Meetings:
Agenda on-line meeting Workshop 15, 18 March 2016
Minutes of Meeting (online) of Workshop 15, 18-3-2016
Agenda meeting Workshop 15, during Congress 2016
Minutes of Meeting of Workshop 15, 11-5-2016
Agenda Meeting Workshop 15, during Congress 2018
Minutes of Meeting of Workshop 15, 16-05-2018
Presentations and Proposal:
Presentation about the Workshop 15, May 2016
Presentation about the Workshop 15, May 2018
Proposal for GA in Vienna for a change in the Charter of HOPE – 2016
Proposal for the Standard – Workshop Charter of HOPE – Congress May 2020
Related files for The Rights and Educational Needs of Sick Children and Adolescents:
A European Standard for the Educational care of sick children and adolescents • download this file
2nd Proposal for: A European Standard for the Educational Care of Sick Children and Adolescents
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Access to education • download this file
Access to Education for children and young people with Medical NeedsDepartment for education and SkillsComplete Text – Date of issue: Nov 2001United Kingdom
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Un Convention • download this file
UN Convention on the Rights of the Child
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European_Charter_1986 • download this file
A European Charter on Children Admitted to Hospital. Meeting-Document
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Access to Education • download this file
Access to Education for children and young people with Medical needsDepartment for education and SkillsSummary – Date of issue: April 2002United Kingdom
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A HOPE – Survey – summary and comments • download this file
Education of children and adolescents with medical needs in hospital or at homeA HOPE – Survey (2007 – 2008)Summary, Identified Barriers, Examples of Good Practiceby Ms Gerd Falk-Schalk, HOPE President*Updated* on October 2009
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Survey – Answers from Ministries • browse and download files from the FILES directory of the HOPE website under Current Information -> Active Projects -> 15 The Rights And Educational Needs -> Answers
single answer from each Country
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Survey – Overview of the answers received in table • download this file
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Amsterdam 2012 • download this file